This story brings tears to my eyes and fury to my soul - I think about children that I know who have been unjustly arrested and treated like criminals due to their disabilities. This is what our crisis teams look like sometimes. Even upon discharge from the hospital, we were told there was nothing else they could do and no where to send our son. The suggestion from DDD and hospital staff was to take him home and call the police if we needed assistance!
I know that this was told to us because they had nothing else to tell us - there was no place for him to go and they were right, the hospital wasn't helping. There were many tears in the room at that discharge meeting and not just mine. Everyone felt terrible with their hands tied and no resources available. Several of the members called me that night, still in tears about what had not happened. It's a tragedy and I'm fired up to change things.
We need to be advocates for real change for the benefit of our family members - not sugar coating and patting the backs of services already in place. We need to look beyond what we have.