WELCOME

Among those of us who care deeply for and about people with developmental disabilities, I hope to hear emerge a new voice, ours, rising together for the benefit of all, harmonizing with reason, respect and hope, and transcending divisions, giving birth to a new era of creative cooperation.

Toward this potential, DD EXCHANGE is for conversation, civil sounding off, sharing of stories, experience, information, resources, and inspiration, giving and receiving support, and creative problem solving.


Finding Your Way Around

TO SEE OTHER'S INPUT: below each post on the right, click "links to this post;" or in the left side column, under "Labels," click the discussion link that interests you.

If there is no comment box below the post, click on
"# comments." It should open one.

TO CONTRIBUTE: add comments to posts in comment boxes &/or submit an article. Comments may also be sent for posting on your behalf. Email address as follows:

EMAIL: ddexchanges@gmail.com

MAILING LIST: add or remove name:
send request to email address, above.

WEB LINKS: to access other websites of interest, in the list to the right, just click on the underlined name.

FOLLOWERS: interested people, websites, organizations, businesses
who follow our discussions & choose to be public about their support.
Become a follower. Public support is a good thing!




Showing posts with label EVENTS. Show all posts
Showing posts with label EVENTS. Show all posts

Monday, May 17, 2010

MOVIN' FOR MONEY

by
Peanut Butter & Jelly

As I watched his shoulders smoothly roll back and forth, his arms slicing through the water, his strong legs kicking behind with hardly a splash, I remembered that my son was always more graceful in water than he was on land. As a toddler he crashed his way through life with more than his fair share of thumps and bumps; a "toe runner" the neurologist called him, and then something about it being a developmental indicator that had something to do with delays, and then there was this low muscle tone thing, which was really hard to understand because this was the most active two-year-old on the planet. A whirling dirvish, my grandmother called him. He would buzz around a room with such high level energy that his fine blond hair would be sweat-soaked and stuck to his head. Then we discovered the pool. There was something about the water resistance and being horizontal that set his "body map" right. Maybe it was like a return to the uterus, you think? Whatever it was and is, if you watch him walk, you can tell there is something "different" about him. But when you see him swim, you see he is all right with the world.

So I watched him, and the people he has grown up with for the last twenty five years, as they swam laps at the Meadowbrook Pool to raise money for Seattle Parks Specialized Recreation Programs. Most of these people, like my son, are completely at home in the water, and in their own skin, their own joy, as they experience the freedom from gravity and the joy of play on purpose. There is no competition here. Every participant has raised money by pledging to swim a certain number of laps and getting friends and family members to sponsor them. I am envious that nobody cares what they look like in their bathing suit, nobody has body hang-ups, nobody cares how fast they swam a lap or if they rested between laps or even in the middle of a lap. It so isn't the point. And it so makes me wonder if, in our competitive, hurried, false-beauty conscious world we do get the point.

The participants who didn't swim walked laps around the track, or rolled around it in their wheelchairs. The high school marching band gave a great performance, and the laid-back atmosphere of the day was a reminder that we might all slow down once in awhile and lap up life for all the right reasons.

peanut butter & jelly

It is not too late to contact Seattle City Council Members about retention of the Specialized Programs in the Seattle Parks Department budget. They won't know how important the programs are unless we tell them.
Saskia

Saturday, April 17, 2010

***********LIFE IMITATES ART**********

8th Annual Sprout Film Festival
"Making The Invisible Visible"
April 30th-May 2nd, 2010
NEW YORK

"NEW YORK, April 16 /PRNewswire-USNewswire/ -- The 8th Annual Sprout Film Festival invites the general public to experience a film festival which showcases the lives, performances, and accomplishments of people with developmental disabilities. Held at the Metropolitan Museum of Art over the weekend of April 30th-May 2nd, 2010 the Sprout Film Festival will present 32 films from 11 countries in 16 programs along with a photo exhibit by famous photographer Mary Ellen Mark called 'Extraordinary Child.

The slogan "making the invisible visible" has been the goal for the festival since it first began in 2003. Sprout is bringing awareness to the unseen, unheard population of people with developmental disabilities including Autism, Down Syndrome and Mental Retardation. Aiming to reinforce accurate portrayals of people with developmental disabilities, films selected for the festival are entertaining, memorable and enlightening. The films focus on real life challenges and issues ranging from relationships, marriage, self-esteem, self-advocacy through sexual desires and general acceptance to fit in a world where persons are often treated as second class citizens."

For more details: Click here: making the invisible visible:' Life Imitates Art at The 8th Annual Sprout Film Festival -- NEW YORK, April 16 /PRNewswire-USNewswire/ --

"In addition to our annual festival in NYC, the festival also tours the country screening an ever-growing selection of films to areas throughout the US. www.sprouttouringfilmfestival.org:

Sunday, April 4, 2010

********************NAMIWalks*******************

*
A phenomenon which we seldom see discussed is dual and multiple diagnosis among people with developmental disabilities. Mental illness is among the more common problems with which it can be paired. Another very challenging situation occurs in families in which one child has a developmental disability and another has a mental illness.

The following invitation comes from a parent who has such experience and is out there, working to help both problems!
*
MARK YOUR CALENDAR!
May 15, 2010
NAMIWalks for the Mind of America


Seattle, WA at Magnuson Park at Sand Point
(enter at 74th St. on Sand Point Way)

Written by Cheryl Felak: 4/4/10 @ 7:43pm
I am writing you today to tell you about an upcoming event that I am participating in that is both very important and very exciting to me. It is NAMIWalks for the Mind of America, NAMI’s signature walkathon event:

I have formed a team in honor of 2 organizations:
ActionDD, a grass-roots advocacy group for people with developmental disabilities. The people in ActionDD have been tireless in promoting dignity for all and a continuum of care. This includes maintaining Washington's Residential Habilitation Centers. I invite you to come and walk with me in this organization's honor.

NAMI, the National Alliance on Mental Illness, is the largest education, support and advocacy organization that serves the needs of all those whose lives are touched by these illnesses. This includes persons with mental illness, their families, friends, employers, the law enforcement community and policy makers. The NAMI organization is composed of approximately 1100 local affiliates, 50 state offices and a national office.

I am also walking in honor of family members, friends and caretakers of those with mental illness. The goals of the NAMIWalks program are: to fight the stigma that surrounds mental illness, to build awareness of the fact that the mental health system in this country needs to be improved, and to raise funds for NAMI so that they can continue their mission.

I would like to ask you to come and walk with me or donate to support NAMI in this great event.

Visit my personal walker page to sign up: http://www.nami.org/namiwalks10/SEA/cheryl (Click on link in side list or copy and paste). It features a link to my team's page where you can see who else is walking with me. There is also a link so you can donate directly to me online. Donating online is fast and secure, and I'll get immediate notification via e-mail of your donation.

NAMI is a 501(c)3 charity and any donation you make to support my participation in this event is tax deductible. NAMI has been rated by Worth magazine as among the top 100 charities "most likely to save the world" and has been given an "A" rating by The American Institute of Philanthropy for efficient and effective use of charitable dollars.

Thank you in advance for your support.

Sincerely,
Cheryl Felak

Friday, February 12, 2010

RHC Residents' Rights Rally

RHC Residents' Rights Rally Saturday, Feb 13, 11:30-4:00

Help save the rights of families to choose the services for their loved ones that serve their "best interests."

Families, caregivers & union members from across the state are coming to rally for our loved ones!

We will share stories, & make friends and connections

to become even more effective to sustain the rights of all of the state's qualifying residents with DD, ( not just the current RHC residents).

If you care about someone who lives in an RHC,

if you work in an RHC and care about the rights and wellbeing of RHC residents,

if you have a loved one who lives in the community and you want the peace of mind provided by knowing that, if your loved one, one day, needs such a haven, it will be there for him or her,

please join the party!

Families and caregivers are coming from

Yakima Valley (coming over a snow pass both ways)
Rainier School
Fircrest School

Come meet these and other FHMC families and staff who have been working to rescue the RHCs and the rights of the residents who need them.

WHERE: Bremerton: Corner of Kitsap Way and Adele Avenue (where you turn off Kitsap Way to go to FHMC) in Arnold’s Furniture Parking lot

WHEN: 11:30 am to 4 pm Saturday, February 13